6A/ Hello - Fasten Health, hello.coop / Dick & Jason

Session 6A

Hello - Fasten Health, hello.coop

Session Convener: Dick Hardt, Hello.Coop : Jason Kulatunga, Fasten Health

Notes-taker(s): Chris Heuer

Tags / links to resources / technology discussed, related to this session:

#Healthcare #MedicalRecords #HealthData #humancentric

Register your interest in getting involved with Jason here: https://docs.google.com/forms/d/e/1FAIpQLSd5EK-P0NqYqAazZaX0w2rUG2t7GIyNOw-I-cjKI4lC3pfcuw/viewform

Discussion notes, key understandings, outstanding questions, observations, and, if appropriate to this discussion: action items, next steps:

Jason Kulatunga, founder of Fasten Heath shared his personal journey through the medical system to resolve a simple issue, which was ridiculously complicated to solve. He had to interact with 7 health care providers to even get to understand he had a chronic issue.

Basically, the balkanization of the health data landscape.

HIPPA doesn’t apply once you’ve shared your health data with a 3rd party! Did not know that.

Posted on Reddit “self-hosted”. The post was very popular.

The post on Reddit is here https://www.reddit.com/r/selfhosted/comments/xj9rx7/introducing_fasten_a_selfhosted_personal/

Dick Hardt demonstrated how Hello.coop can more easily manage the aggregation of that data in a secure method, for the different situations required in managing our health care records.

How is the encryption key managed?

Dick explained this at the 12min mark of the recording/transcript

Jason did a demo in a sandbox of how the app/service works. (min mark 13ish)

Demo accounts/data imported from Medicare.com, Epic, and Care Evolution

Interesting approach to only decrypting and accessing the health data, only when the user is present - so will not automatically refresh and store their data without their express consent and action.

Great discussion on underlying decisions in approach/architecture and how the medical records are handled securely.

If their is a breach in his architecture, there is no real exposure for the user’s data.

“Break the glass” user story… ????