The Blue Button Experience

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The Blue Button Experience


Tuesday 1F

Convener: Sarah Medjek

Notes-taker(s): Tom Brown

Tags for the session - technology discussed/ideas considered:


Discussion notes, key understandings, outstanding questions, observations, and, if

appropriate to this discussion: action items, next steps:


Link (english) for control of personal data in general: http://mesinfos.fing.org/english/


MesInfos Santé : "My Data" (2013) - give personal info to individuals and see what would happen. 6

companies, 8 months.


Finding: Use of health data very different from other personal data


There is a lot of health data that is not medical data.


Group discussion:


Veterans administration seems to be the socialized exception of U.S. health care.


Hand notes makes doctors less liable


Epic - most popular medical records supplier


In France, doctors reluctant to share data because they seems to think it belongs to them. very

similar in U.S. - if they operate in a legal environment, they have to be reluctant


Patient has no influence


Part of the idea of having electronic records is that diagnosis and treatment of condition can be

known over time among several specialists